What does Good Care mean to you? The PatientsLikeMe Good Care model

The medical community measures successes in different ways when it comes to healthcare treatment. We wanted to hear from YOU about what good care means.

It is common to feel anxious when you're heading to the doctor. Maybe you’re getting tests run, results read, or you’re afraid to talk through something that has been worrying you. However, when you receive good care as a patient, it can change your outlook about your care team and make you feel even more comfortable the next time you visit.

But what really is good care?

How we studied Good Care

In 2017, PatientsLikeMe looked to better understand what good care is by using a method called "concept mapping" to create the Good Care model. Here’s how we did it:

We collected statements about what good care means - We surveyed PatientsLikeMe members to ask for statements about good          care and researched literature for how good care could be defined. We collected almost 2,000 statements!

We narrowed the statements down to a group of 79 – We looked at all that our members told us and created a list of statements that     encompassed everything they said.

We asked members to group and rate the statements – Using concept mapping software, we asked our patient partners to look at         the list of statements and group the ones that had the same themes together. You could create as many groups as you liked. We also     asked members to rank the statements on a scale of 1 to 5 of how important they were when it came to good care.

    Using this data, we created a concept map that breaks good care into ten key pieces:

PatientsLikeMe Good Care Model

1. Active patient role – feeling empowered and an active player in care

2. Effective treatment selection – receiving care that is safe, appropriate and accurate with no unnecessary procedures

3. Collaborative care – the patient and doctor work together as a team to discuss diagnosis, treatments that work and don’t work and        take into account not only symptoms, but also emotional and social aspects that affect health

4. Doctor competence – having a provider who is informed and knowledgeable

5. Focus on outcomes – use of the right treatments to get the desired outcome (e.g. less pain) and feeling as if everything is being             done to get the best possible outcome

6. Effective treatment delivery – having a provider who is on time, prepared and follows up after the visit

7. Individualized and empathetic care - feeling like your doctor listens to you and cares about you as a person rather than a disease

8. Staff communication – staff communicate with each other so that patients aren’t asked the same questions many times

9. Care accessibility and cost – the ability to choose providers and access care that is affordable and covered by insurance

10. Office management – having a clean, organized office with educational materials and proper care coordination

How do I read the map?

These ten items all are displayed on the map in unique shapes. If statements in one group were grouped together very commonly, the shape of the group is a lot smaller, like items 1 and 7. When statements are grouped together less commonly, shapes are bigger and more spread out like item 9. The stacks of the shapes indicate how important that item is to good care from the ratings collected. For example, 5 and 9 ranked higher in importance than 3 and 4. You can read the full publication with methods and more analyses here!

Tell us what you think of the model!

What did you think about the ten components of good care? Do you think there’s anything missing or are these important to you as well? Join us and share your thoughts with the community!

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